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Welcome to the Tubafrost Central Database |
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You are logged on as : Researcher / Doctor
 What are the Patient's rights? For the patient, the rights stay exactly the same as before OECI-TuBaFrost. The patient has the right to withdraw consent for the storage or further use of left-over tissue at any time through consultation with the treating doctor or opt out at the local hospital, depending on the local rules and regulations. It is possible that if the patient changes his/her mind a long time after an operation, some of the tissue may already have been used for research. Whatever the patient's decision, it will not affect his/her surgery or any other part of his/her treatment or care. What will happen to the results of the research? Results will be published as appropriate in various scientific magazines and the links to these research papers will be published on the TuBaFrost website. All information stays anonymized and therefore the patient will not be identified in any publication. Unfortunately, information on the outcome of experiments can never be given back to patients directly, because it concerns experimental data that still needs verification and validation on its usefulness in a routine practice. As soon as the method or treatment is validated and implemented as a routine practice the patient will receive the innovated treatment also in a certified or accredited way. |
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